We’ve gotten used to thinking about having cancer in your colon or lung or breast. We’ve systematized treatments and research of cancer by the organ that’s affected. And we’ve been fundraising that way too–pitting lung cancer against breast cancer against childhood cancers. But what if this view of cancer is totally...
Read MoreReduce Suffering In Healthcare [Video]
Understanding Suffering Empathy is about standing in someone else’s shoes, feeling with his or her heart, seeing with his or her eyes. ~ Daniel H. Pink People who are in the healthcare system on a chronic basis know suffering. Some of it is due to their condition, but some of it is caused by the system itself. Here’s a scenario we are all too...
Read MoreMyth Busting Diabetes
Stigma and Myths Stigma and myths go hand in hand. Myths feed the fear and misunderstanding that people use to stigmatize others and blame victims. Branding people by saying that they “caused their condition” is unproductive and unfair. This problem is happening with Type 1 and Type 2 diabetes. Here are some myths about diabetes and recent...
Read MoreAngiosarcoma Awareness: Bridging Barriers Online
An Unstoppable Force Lauren knew that we all have a common, overarching goal….We all want to live. More importantly, we all want each other to live. Scientists offer science. People with similar presentations compare notes. And always with great affection and love. What may have started as a simple support group is becoming an unstoppable force,...
Read More9 Reasons Why “Compliance” Can’t Describe Taking Medications
The first post on compliance and adherence discussed the power of the words “compliance” and “adherence”, the history of their use and the negative impact these words have on people with chronic conditions. T1 HATE hate hate hate the word “adherence.” Makes pts who cannot follow instructions to the letter seem like...
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