In a nutshell
This study looked at the long term effect on health-related quality of life in adults who were diagnosed with juvenile idiopathic arthritis as children. The authors concluded that health-related quality of life was reduced in adults who had juvenile idiopathic arthritis as children.
Some background
Juvenile idiopathic arthritis (JIA) is a common form of arthritis in children under the age of 16. It can cause limited mobility, stiffness and swelling in the joints. Patients often suffer from persistent pain and discomfort. There is no cure for JIA and so the main goal is to make everyday living as comfortable as possible for patients.
Studies have shown that health related quality of life (HRQOL) in children with JIA is lower than in the general population. It is not clear what the long term effects of JIA are on adults.
Methods & findings
2592 adults who had a JIA diagnosis as a child completed a questionnaire about their HRQOL. The study assessed limitation in mobility, self-care and usual activities. Patients also rated pain/discomfort and anxiety/depression. The results were compared to the general population.
Pain and discomfort was the most common problem, reported by 56% of JIA patients, compared to 28% of the general population. Anxiety and depression were reported by 28% of JIA patients. Limitations to usual activities was reported by 26% and limited mobility was reported by 25%.
The JIA patients reported an overall lower health-related quality of life than the general population.
The bottom line
This study concluded that pain and discomfort causes the most distress in adult JIA patients. Overall, JIA patients report a lower health-related quality of life than the general population.
The fine print
This study only included a limited number of quality of life measurements and was carried out in a single population.
What’s next?
Consult with your physician regarding any distress relating to juvenile idiopathic arthritis.
Published By :
PLOS ONE
Date :
Apr 26, 2016
