An Unstoppable Force Lauren knew that we all have a common, overarching goal….We all want to live. More importantly, we all want each other to live. Scientists offer science. People with similar presentations compare notes. And always with great affection and love. What may have started as a simple support group is becoming an unstoppable force,...
Read More
The first post on compliance and adherence discussed the power of the words “compliance” and “adherence”, the history of their use and the negative impact these words have on people with chronic conditions. T1 HATE hate hate hate the word “adherence.” Makes pts who cannot follow instructions to the letter seem like...
Read More
Any Trekkie (Star Trek Fan) would know this greeting of the Borg that ends with “Resistance Is Futile.” What Does Compliance Mean? According to the Merriam-Webster Dictionary, compliance is “the act or process of doing what you have been asked or ordered to do.” This word is part of the legal, militaristic language of quarantine. In the US, Congress...
Read More
Parent Activism In 1954, Milton and Evelyn Graub learned the devastating news that both their son and daughter, Lee and Kathy, had cystic fibrosis. They reached out to other parents, held their first fundraiser and in 1955, founded what is now the Cystic Fibrosis Foundation (CFF). The CFF has been instrumental in making this rare disease visible. It has...
Read More
The Wisdom of Youth When he turned 16, Carey Hughley III showed his brand new driver’s license to his sister Alisa. “You’re an organ donor?” she asked. “Yeah,” he said. “I’m not gonna need ‘em when I’m dead,” In high school Carey was part of the swim team that set the NC state record in the 200-meter freestyle relay. ...
Read More
