Katie McCurdy has myasthenia gravis, a rare autoimmune condition that she acquired when she was 13. This conditions affects the muscles of the body, but especially those that control eyes and eyelids, facial expression, swallowing and sometimes breathing. It’s been an ordeal for her, from diagnosis to now when she goes to the doctor and tries to...
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After three hurricanes, flooding, fires and mudslides, and now severe cold and snow in the Deep South and throughout the country, the US has had its share of emergencies. Are you prepared? For people who rely on oxygen, who are on dialysis, have diabetes or other serious conditions, it is time to think about putting together some of the essentials. What...
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The first post on compliance and adherence discussed the power of the words “compliance” and “adherence”, the history of their use and the negative impact these words have on people with chronic conditions. T1 HATE hate hate hate the word “adherence.” Makes pts who cannot follow instructions to the letter seem like...
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Any Trekkie (Star Trek Fan) would know this greeting of the Borg that ends with “Resistance Is Futile.” What Does Compliance Mean? According to the Merriam-Webster Dictionary, compliance is “the act or process of doing what you have been asked or ordered to do.” This word is part of the legal, militaristic language of quarantine. In the US, Congress...
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Over the years spent tweeting together, the #BCSM (Breast Cancer Social Media) tweetchat community has asked some tough questions. #BCSM is a community on Twitter that meets every Monday night at 9pm ET. On November 18th, they continued their annual “holiday survival guide” or holidays and chronic illness. How To Celebrate With a chronic...
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