Barry Nelson, Patient Advisor at Brigham and Women’s Hospital Center for Patients and Families participated in a webinar on January 11 organized by The Center for Health Education Research Service in Boston, Massachusetts. [1] During the webinar, Nelson described his experience as a cancer survivor. “I was diagnosed with advanced lung cancer...
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In April, the American Association for Cancer Research (AACR) held a free education event on cancer called Progress and Promise Against Cancer in Washington, D.C. Surrounded by experts in cancer research, Kim Hall Jackson shared her patient story. One evening in 2008, Jackson, an event planner, was running the mayor’s inaugural event in...
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Stephanie Zimmerman has been featured in two previous posts. In a June 2016 post called, “After Cancer Treatment: Living Out the Cure,” Stephanie shared her experiences as a survivor of childhood cancer, specifically her experience of long-term side effects of cancer treatment. In a subsequent post, Stephanie @KindredBelle shared her advice...
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While writing “Not My Problem” Healthcare: Cultural and Societal Ethics, many questions about healthcare and the experiences of patients and caregivers who advocate arose. Like.. Why are derisive adjectives, (like “difficult” and “demanding”) used to label patients and caregivers who ask hard questions? Why is shunning of...
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SCAD Heart At age 38, after the birth of her second son, Katherine K. Leon had a heart attack. Atypical? Indeed. This young, physically fit woman had no risk factors associated with heart disease. She had a SCAD heart attack. A Spontaneous Coronary Artery Dissection, SCAD is an extremely serious and often fatal condition. Here’s what happens. Coronary...
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There are two phrases making the rounds that describe you, a member of the growing Medivizor.com community. One is “e-patient” and the other is “smart patient.” What is an e-patient? Who created the phrase? Published in March of 1996, Health Online: How to Find Health Information, Support Groups, and Self-Help Communities in Cyberspace, first...
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